Advocacy

What is advocacy and why is it important?

Advocacy for research, health & long-term care, and caregiver support is the primary function of the National Advocacy Department of The ALS Association. Based in Washington, D.C., The ALS Association’s Capital Office coordinates the federal and state advocacy program, works directly with Congress, the White House, other federal agencies and other national organizations, and provides training and support for ALS Association advocates.

The Capital Office also organizes The ALS Association’s National Advocacy Day and Public Policy Conference each year. This event is the ALS community’s only opportunity to join together to educate Members of Congress on the importance of stepping up the fight to conquer ALS through research, care and support.

The Advocacy Department’s real strength derives from a national network of chapters, persons with ALS and their family members who make up The ALS Association Advocacy Network. Their dedication and commitment to help current and future generations affected by this horrific disease was instrumental in the historic passage of the 24-month Medicare waiver for ALS patients and the recent presumptive disability ruling from the Social Security Administration. The ALS Community’s involvement in advocacy has also led to increased federal funding for ALS research at the NIH and federal funding for ALS research through the Department of Defense, a first for our organization!

While we are encouraged by our accomplishments, we know there is much more to be done to strike out ALS. We need your help!